Yes. I live with dementia. Let me help you understand: Robin Barrett

Yes. I live with dementia. Let me help you understand: Robin Barrett

Robin Barrett lives in Ottawa, Ontario, where she supports her husband, Keith, diagnosed with Alzheimer’s disease in 2016. My husband Keith was diagnosed with young onset dementia (YOD)—probable Alzheimer’s in December 2016 at 57 years old. This was following about two and a half years of seeing various specialists. At one point, he had seen about six different neurologists. Keith and I have been together since 2004 and married in June 2016. We eloped together in New Orleans and it…

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Yes. I live with dementia. Let me help you understand: Keith Barrett

Yes. I live with dementia. Let me help you understand: Keith Barrett

Keith Barrett, 59, lives in Ottawa, Ontario with his wife Robin. For over 20 years, Keith has co-owned a business supporting adults and children with developmental and physical disabilities. He continues to work full-time. Keith was diagnosed with Alzheimer’s disease in December 2016. The news was that I had young onset dementia (YOD)—specifically, Alzheimer’s—was difficult news to hear and I couldn’t believe it. I was retested in the spring of 2018 as I did not present as having young onset,…

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Yes. I live with dementia. Let me help you understand: Jane Kennedy

Yes. I live with dementia. Let me help you understand: Jane Kennedy

Jane Kennedy lives in Newmarket, Ontario, where she works as a teacher. She is also a caregiver to her mom, Eileen, who was diagnosed with Alzheimer’s disease in 2016. My mom was officially diagnosed at age 84. However, there were signs already of dementia for some time. The diagnosis didn’t come as a complete surprise because my grandmother had it and I was already seeing some early signs with my mom. I would say though that I also experienced some…

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Yes. I live with dementia. Let me help you understand: Ron Robert

Yes. I live with dementia. Let me help you understand: Ron Robert

Ron Robert, 81, lives in London, Ontario. Highly interested in politics, Ron worked as a journalist for two decades covering the British Columbia, Alberta and Saskatchewan provincial legislatures before working the western desk for then-Prime Minister Pierre Trudeau. Ron was diagnosed with Alzheimer’s disease in 2015. My family and I are very familiar with Alzheimer’s—so my diagnosis, while upsetting, was not a complete surprise. I have two siblings who were also diagnosed with the disease. Even though there is a…

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Visiting someone with dementia over the holidays? Here are 10 tips

Visiting someone with dementia over the holidays? Here are 10 tips

Now that the holidays are here, you may be circling some dates in your calendar for visits with friends and family. As the song goes, it’s the most wonderful time of year. Although, after gift buying, party planning and more, it can certainly feel like it’s the most stressful! It can feel even more trying for a person living with dementia. Common features of a holiday gathering—large groups of people, a quick pace and loud, frequent noises—can leave someone with…

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Gift ideas for people with dementia

Gift ideas for people with dementia

The holiday season is upon us, and many of us are on the hunt for the perfect gifts for the special people in our lives. If someone on your list has dementia, it can be challenging to think of gifts that are appropriate given the person’s changing abilities. But no matter the stage of the disease, the right gift exists that can bring them joy and support their quality of life. While you’re making your list and checking it twice,…

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Meet our Researchers: Lillian Hung, Simon Fraser University

Meet our Researchers: Lillian Hung, Simon Fraser University

As Canada’s population ages and more people are diagnosed with Alzheimer’s disease or another form of dementia, hospitals are seeing a growing number of acute care visits by people with dementia. The reason for their stay may not directly relate to their dementia. For example, they may have heart disease, they may have broken bones after a fall or they are feeling depressed. However, a stay in the hospital can be a stressful if not frightening experience for anyone, and…

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Falls and Dementia: What You Need to Know

Falls and Dementia: What You Need to Know

 As the weather gets colder and the ground freezes over, we all start to feel a little unsteady in our footing. But for people living with dementia, the fear of falling can be more than an occasional thought in the wintertime. November is Fall Prevention Month, and we want to discuss why, for older adults and people living with dementia, falls are an everyday worry. In fact, falls can be dangerous, if not deadly. The concern of falling isn’t one…

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Let’s talk about help for today

Let’s talk about help for today

When I last spoke with you, I asked what you thought about dementia research in Canada and the challenges we face together. Supporters like you, speaking from your own personal experience, agreed that this isn’t a tomorrow problem for Canada—it’s our problem today! Today, I’m reaching out again to give you an update and ask for more of your insights. An update on the national dementia strategy As CEO of the Alzheimer Society of Canada, I am pleased to have…

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Ensuring your charitable legacy: How to choose the right fiduciary

Ensuring your charitable legacy: How to choose the right fiduciary

When planning your charitable legacy, it’s important to appoint a fiduciary that acts on your financial behalf. But what exactly does a fiduciary do, and why are they important? Today, the Alzheimer Society of Canada and RBC Wealth Management, Estate & Trust Services partner up to give you insights and tips on choosing the right fiduciary for you. Your charitable legacy When it comes to supporting dementia research as well as programs and services for people with dementia and their…

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