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Category: Advocacy and Public Policy

Let’s talk about research

Let’s talk about research

Today, I’m reaching out because I want to know what you think about dementia research in Canada. Your own experience and the wisdom of your insights can help the Alzheimer Society amplify the voices of people like you – ensuring that these voices are heard and action is taken. I hope you will join the conversation. Since coming on board as CEO, the goodwill, expressions of support and advice from individuals across the country have been heartwarming and deeply appreciated….

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“I am a person with dementia and a person with rights.” (part three)

“I am a person with dementia and a person with rights.” (part three)

Previously in our series on human rights and dementia, we looked at how past experiences inspired Phyllis Fehr to advocate for dementia rights (Part one: Becoming a force for change—Phyllis Fehr’s story). Then, Phyllis showed us how seven articles in the United Nations’ Convention of Human Rights can improve the quality of life for Canadians living with dementia right now (Part two: Understanding dementia from a human rights’ perspective).

“I am a person with dementia and a person with rights.” (Part two)

“I am a person with dementia and a person with rights.” (Part two)

When we last left Phyllis Fehr, we heard about how her experiences inspired her to take on her current role as a leading advocate for human rights for people with dementia. (If you haven’t yet, check out part one of this series, Becoming a force for change—Phyllis Fehr’s story.) One of Phyllis’ current focuses is the Convention on the Rights of Persons with Disabilities, an international human rights treaty that was adopted by the United Nations almost a decade ago….

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“I am a person with dementia and a person with rights.” (Part one)

“I am a person with dementia and a person with rights.” (Part one)

Part one: Becoming a force for change—Phyllis Fehr’s story This blog series is based on the webinar, “I am a person with dementia and a person with rights,” hosted by brainXchange and presented by Phyllis Fehr on December 13, 2017 (part one) and January 17, 2018 (part two). One day, Phyllis Fehr walked through the doors of a grocery store, and found confusion. Phyllis, who had been given a working diagnosis of early-onset Alzheimer’s along with Lewy Body dementia at…

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The importance of palliative care for people living with dementia

The importance of palliative care for people living with dementia

In her opening remarks to the Senate Committee on Social Affairs, Science and Technology, Alzheimer Society of Canada CEO Pauline Tardif led with an alarming fact. “Right now, well over half a million Canadians are living with dementia—and the numbers keep growing,” she said. “Access to palliative care has become even more important today.” Pauline had taken to Parliament Hill to support Bill C-277, An Act providing for the development of a framework on palliative care in Canada. If passed,…

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September 21st is World Alzheimer’s Day

September 21st is World Alzheimer’s Day

There are many ways to get involved and show your support of Alzheimer’s disease and dementia this month. One small act can make a remarkable difference to the men and women who are impacted by dementia. Top 5 ways you can make a difference this month: Learn more about Alzheimer’s disease. Understanding Alzheimer’s disease and dementia is the best way to help those that are impacted. Do you know the risks, prevention, and how to best support those with the…

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Canada to become 30th country with national dementia strategy

Canada to become 30th country with national dementia strategy

The Alzheimer Society of Canada celebrates the passage of Bill C-233, An Act respecting a national strategy for Alzheimer’s disease and other dementias. Canada will now become the latest country to develop a national dementia strategy to address the overwhelming scale, impact and cost of dementia. “For the more than half a million Canadians living with dementia and their families, this is an important milestone,” says Pauline Tardif, CEO of the Alzheimer Society of Canada. “A national strategy enables a…

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Why language matters

Why language matters

Jim Mann, a person living with Alzheimer’s, discusses the impact of language on people with dementia, and how words have the power to harm or heal.

Ontario Achieves a Fully-Funded Dementia Strategy in the 2017 Budget!

Ontario Achieves a Fully-Funded Dementia Strategy in the 2017 Budget!

On Thursday, April 27th, 2017, Ontario Finance Minister, Charles Sousa, introduced the 2017 Ontario Budget, A Stronger, Healthier Ontario, which included $100 million over three years for the implementation of an Ontario dementia strategy. This is in addition to the $20 million investment for improving respite care for unpaid care partners that was announced earlier in the week. This is a major win for the over 220,000 Ontarians and their families who have been impacted by dementia! The Alzheimer Society…

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CarePartners has taken action for dementia!

CarePartners has taken action for dementia!

With over 200,000 people in Ontario living with dementia today, we need an Ontario dementia strategy to make sure that our communities receive the support they need. The Alzheimer Society of Ontario has led the movement to have a fully-funded dementia strategy included in the Ontario government’s 2017 budget, and we are now awaiting the upcoming announcement of the budget. In support of our initiative, CarePartners has generously donated not only financially, but their time as well, to help build…

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