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Category: Awareness

“I am a person with dementia and a person with rights.” (part three)

“I am a person with dementia and a person with rights.” (part three)

Previously in our series on human rights and dementia, we looked at how past experiences inspired Phyllis Fehr to advocate for dementia rights (Part one: Becoming a force for change—Phyllis Fehr’s story). Then, Phyllis showed us how seven articles in the United Nations’ Convention of Human Rights can improve the quality of life for Canadians living with dementia right now (Part two: Understanding dementia from a human rights’ perspective).

“I am a person with dementia and a person with rights.” (Part two)

“I am a person with dementia and a person with rights.” (Part two)

When we last left Phyllis Fehr, we heard about how her experiences inspired her to take on her current role as a leading advocate for human rights for people with dementia. (If you haven’t yet, check out part one of this series, Becoming a force for change—Phyllis Fehr’s story.) One of Phyllis’ current focuses is the Convention on the Rights of Persons with Disabilities, an international human rights treaty that was adopted by the United Nations almost a decade ago….

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Let’s talk about dementia, mental illness and mental health

Let’s talk about dementia, mental illness and mental health

January 31 is Bell Let’s Talk Day, an initiative to encourage conversations, increase awareness and end the stigma around mental illness. One aspect of the conversation that’s not often talked about is mental health among older adults and seniors, and how this intersects with dementia. So today, let’s talk about it. Here are five things you should know about dementia, mental illness and mental health: 1) Dementia caregivers experience higher rates of depression than all other caregivers. Did you know…

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“I am a person with dementia and a person with rights.” (Part one)

“I am a person with dementia and a person with rights.” (Part one)

Part one: Becoming a force for change—Phyllis Fehr’s story This blog series is based on the webinar, “I am a person with dementia and a person with rights,” hosted by brainXchange and presented by Phyllis Fehr on December 13, 2017 (part one) and January 17, 2018 (part two). One day, Phyllis Fehr walked through the doors of a grocery store, and found confusion. Phyllis, who had been given a working diagnosis of early-onset Alzheimer’s along with Lewy Body dementia at…

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Researcher Sarah Wu is doing something about dementia, and starting in the dining room

Researcher Sarah Wu is doing something about dementia, and starting in the dining room

You may already know that there is no cure for Alzheimer’s disease. While some researchers are diligently looking for effective treatments, others are looking at more social models of care. Many Alzheimer Society Research Program grant recipients are working toward a friendlier future for those living with Alzheimer’s disease or other dementias. What does relationship-centred care for someone living with Alzheimer’s look like? University of Waterloo doctorate student Sarah Wu is investigating long-term care, and searching for opportunities that may…

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People like Margaret are more than just a number.

People like Margaret are more than just a number.

Did you know that of the 564,000 Canadians with dementia, 60% will go missing or become lost at some point? These men and women are more than just a number. And so are you. You have the power to be the one who makes an impact. By making a donation today, you can help fund dementia research initiatives and support vital programs for people with dementia and their families. With your support, we can help people like Margaret and her…

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Racing for memories

Racing for memories

Recently, my family has joined the unfortunate ranks of those who have been impacted by Alzheimer’s disease. My mom started showing early signs of the disease a few years ago, and it has slowly and stubbornly progressed ever since. The toll that Alzheimer’s is taking on my mom is obvious and devastating. Less obvious, but just as significant, is the impact it is having on my dad. As my mom’s primary caregiver, it’s been said that my dad must ride…

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Hope in the face of Alzheimer’s

Hope in the face of Alzheimer’s

One might think that having a disease with no cure wouldn’t leave a person with much hope to draw on. The truth is, if you’d asked me how I felt about the future after I was first diagnosed with Alzheimer’s disease, my answer would have been far from ‘hopeful.’ Then, one day, that changed.

Getting a dementia diagnosis – where do you start?

Getting a dementia diagnosis – where do you start?

It can start with something simple, like having trouble following your favourite recipe, or putting your car keys in the fridge. Maybe you’ve noticed small changes in your memory that are affecting how you do things day-to-day. If you can’t quite remember things that should be straightforward for you, or if you notice changes in your mood or ability to communicate, make an appointment to see your family doctor right away. Diagnosing dementia is a complex and difficult process. The…

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Why language matters

Why language matters

Jim Mann, a person living with Alzheimer’s, discusses the impact of language on people with dementia, and how words have the power to harm or heal.