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Tag: advocacy

Let’s talk about help for today

Let’s talk about help for today

When I last spoke with you, I asked what you thought about dementia research in Canada and the challenges we face together. Supporters like you, speaking from your own personal experience, agreed that this isn’t a tomorrow problem for Canada—it’s our problem today! Today, I’m reaching out again to give you an update and ask for more of your insights. An update on the national dementia strategy As CEO of the Alzheimer Society of Canada, I am pleased to have…

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Let’s talk about research

Let’s talk about research

Today, I’m reaching out because I want to know what you think about dementia research in Canada. Your own experience and the wisdom of your insights can help the Alzheimer Society amplify the voices of people like you – ensuring that these voices are heard and action is taken. I hope you will join the conversation. Since coming on board as CEO, the goodwill, expressions of support and advice from individuals across the country have been heartwarming and deeply appreciated….

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“I am a person with dementia and a person with rights.” (part three)

“I am a person with dementia and a person with rights.” (part three)

Previously in our series on human rights and dementia, we looked at how past experiences inspired Phyllis Fehr to advocate for dementia rights (Part one: Becoming a force for change—Phyllis Fehr’s story). Then, Phyllis showed us how seven articles in the United Nations’ Convention of Human Rights can improve the quality of life for Canadians living with dementia right now (Part two: Understanding dementia from a human rights’ perspective).

“I am a person with dementia and a person with rights.” (Part two)

“I am a person with dementia and a person with rights.” (Part two)

When we last left Phyllis Fehr, we heard about how her experiences inspired her to take on her current role as a leading advocate for human rights for people with dementia. (If you haven’t yet, check out part one of this series, Becoming a force for change—Phyllis Fehr’s story.) One of Phyllis’ current focuses is the Convention on the Rights of Persons with Disabilities, an international human rights treaty that was adopted by the United Nations almost a decade ago….

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“I am a person with dementia and a person with rights.” (Part one)

“I am a person with dementia and a person with rights.” (Part one)

Part one: Becoming a force for change—Phyllis Fehr’s story This blog series is based on the webinar, “I am a person with dementia and a person with rights,” hosted by brainXchange and presented by Phyllis Fehr on December 13, 2017 (part one) and January 17, 2018 (part two). One day, Phyllis Fehr walked through the doors of a grocery store, and found confusion. Phyllis, who had been given a working diagnosis of early-onset Alzheimer’s along with Lewy Body dementia at…

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The importance of palliative care for people living with dementia

The importance of palliative care for people living with dementia

In her opening remarks to the Senate Committee on Social Affairs, Science and Technology, Alzheimer Society of Canada CEO Pauline Tardif led with an alarming fact. “Right now, well over half a million Canadians are living with dementia—and the numbers keep growing,” she said. “Access to palliative care has become even more important today.” Pauline had taken to Parliament Hill to support Bill C-277, An Act providing for the development of a framework on palliative care in Canada. If passed,…

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Life with young onset dementia: What you need to know

Life with young onset dementia: What you need to know

What comes to mind when you think of a person with dementia? If you’re like most people, you picture an elderly person in the later stages of the disease. But here’s the thing: dementia doesn’t just happen to older people. While age is still the biggest risk factor, people in their 50s, 40s and even 30s can also develop dementia. We call this young onset dementia and it accounts for about 2-8% of all dementia cases. Right now, 16,000 Canadians…

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Canada to become 30th country with national dementia strategy

Canada to become 30th country with national dementia strategy

The Alzheimer Society of Canada celebrates the passage of Bill C-233, An Act respecting a national strategy for Alzheimer’s disease and other dementias. Canada will now become the latest country to develop a national dementia strategy to address the overwhelming scale, impact and cost of dementia. “For the more than half a million Canadians living with dementia and their families, this is an important milestone,” says Pauline Tardif, CEO of the Alzheimer Society of Canada. “A national strategy enables a…

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People with dementia speak to Senate Standing Committee

People with dementia speak to Senate Standing Committee

In February 2016, the Canadian Senate asked that the Standing Senate Committee on Social Affairs, Science and Technology study the issue of dementia in our society and to provide a final report in January 2017. On May 18, Mary Beth Wighton and the other members of the Ontario Dementia Advisory Group (ODAG) presented to the committee. View the presentation on SenVu or read her remarks:       Good afternoon, Thank you for inviting us to appear before you this afternoon.  It’s…

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This election, support a National Dementia Strategy

This election, support a National Dementia Strategy

On October 19, 2015 the Canadian federal election will be held. And we want to reaffirm that every vote matters. On May 6 of this year, our chance for a national dementia strategy becoming enshrined into Canadian law through MP Claude Gravelle’s private member’s bill C-356 was sadly defeated 140-139. Yes, by one vote. When we hear about people who think votes don’t matter it’s disheartening, because regardless of context, every vote matters. Right now, each one of us gets…

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