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“I am a person with dementia and a person with rights.” (Part two)

“I am a person with dementia and a person with rights.” (Part two)

When we last left Phyllis Fehr, we heard about how her experiences inspired her to take on her current role as a leading advocate for human rights for people with dementia. (If you haven’t yet, check out part one of this series, Becoming a force for change—Phyllis Fehr’s story.) One of Phyllis’ current focuses is the Convention on the Rights of Persons with Disabilities, an international human rights treaty that was adopted by the United Nations almost a decade ago….

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Let’s talk about dementia, mental illness and mental health

Let’s talk about dementia, mental illness and mental health

January 31 is Bell Let’s Talk Day, an initiative to encourage conversations, increase awareness and end the stigma around mental illness. One aspect of the conversation that’s not often talked about is mental health among older adults and seniors, and how this intersects with dementia. So today, let’s talk about it. Here are five things you should know about dementia, mental illness and mental health: 1) Dementia caregivers experience higher rates of depression than all other caregivers. Did you know…

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“I am a person with dementia and a person with rights.” (Part one)

“I am a person with dementia and a person with rights.” (Part one)

Part one: Becoming a force for change—Phyllis Fehr’s story This blog series is based on the webinar, “I am a person with dementia and a person with rights,” hosted by brainXchange and presented by Phyllis Fehr on December 13, 2017 (part one) and January 17, 2018 (part two). One day, Phyllis Fehr walked through the doors of a grocery store, and found confusion. Phyllis, who had been given a working diagnosis of early-onset Alzheimer’s along with Lewy Body dementia at…

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Life with young onset dementia: What you need to know

Life with young onset dementia: What you need to know

What comes to mind when you think of a person with dementia? If you’re like most people, you picture an elderly person in the later stages of the disease. But here’s the thing: dementia doesn’t just happen to older people. While age is still the biggest risk factor, people in their 50s, 40s and even 30s can also develop dementia. We call this young onset dementia and it accounts for about 2-8% of all dementia cases. Right now, 16,000 Canadians…

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Research Video Series: Introducing Danielle Alcock

Research Video Series: Introducing Danielle Alcock

Danielle’s personal experience inspired her to pursue research in the field of continuity of care. She will assess existing services through the use of oral narratives by female, Indigenous caregivers for a loved one diagnosed with alcohol-related dementia and will make recommendations based on their experience. Coming from a First Nations family, it was difficult to navigate the healthcare system dealing with jurisdictional barriers, stigma and a lack of resources. As a caregiver, there are no existing supports for alcohol-related…

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Racing for memories

Racing for memories

Recently, my family has joined the unfortunate ranks of those who have been impacted by Alzheimer’s disease. My mom started showing early signs of the disease a few years ago, and it has slowly and stubbornly progressed ever since. The toll that Alzheimer’s is taking on my mom is obvious and devastating. Less obvious, but just as significant, is the impact it is having on my dad. As my mom’s primary caregiver, it’s been said that my dad must ride…

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Announcing the top 10 Canadian dementia research priorities

Announcing the top 10 Canadian dementia research priorities

[Le texte en français suit l’anglais ci-bas.] By Drs. Katherine McGilton and Jennifer Bethell Over the course of the past year, we asked Canadians affected by dementia—either personally or through their work—for their unanswered questions about living with dementia, dementia prevention, treatment and diagnosis. This study, also known as the Canadian Dementia Priority Setting Partnership, set out to identify the top 10 dementia research priorities, and to share them with Canadian researchers and research funding organizations. We thank the over…

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Get to know our new CEO: Pauline Tardif

Get to know our new CEO: Pauline Tardif

Pauline Tardif was appointed the new CEO of the Alzheimer Society of Canada on March 20, 2017. We recently sat down with Pauline to learn more about her background, her goals for the Alzheimer Society, and her life outside of work.

People with dementia speak to Senate Standing Committee

People with dementia speak to Senate Standing Committee

In February 2016, the Canadian Senate asked that the Standing Senate Committee on Social Affairs, Science and Technology study the issue of dementia in our society and to provide a final report in January 2017. On May 18, Mary Beth Wighton and the other members of the Ontario Dementia Advisory Group (ODAG) presented to the committee. View the presentation on SenVu or read her remarks:       Good afternoon, Thank you for inviting us to appear before you this afternoon.  It’s…

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Cornwall community stepping up to become Dementia Friends

Cornwall community stepping up to become Dementia Friends

One of our core objectives here at the Alzheimer Society of Cornwall and District is to continue to look for new ways to make life better for those living with Alzheimer’s and other dementias.  One way we are looking to bring people closer together is through the Dementia Friends campaign.  As many of you already know, a Dementia Friend is someone who learns a little bit more about what it’s like to live with dementia and then turns that understanding…

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