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Tag: personal story

Brain Awareness Week 2018: Mario’s three keys to living well

Brain Awareness Week 2018: Mario’s three keys to living well

Mario Gregorio resides in British Columbia. He lives with dementia. An advocate for dementia awareness, Mario was one of the faces of Alzheimer’s Awareness Month this past January. I’m celebrating my 70th birthday this year. The best decision I’ve ever made in my life was to seek an early diagnosis. I felt that I needed to take control of my medical situation. And I’m glad I did. An early diagnosis allowed me to research more about dementia. I knew that…

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“I am a person with dementia and a person with rights.” (Part two)

“I am a person with dementia and a person with rights.” (Part two)

When we last left Phyllis Fehr, we heard about how her experiences inspired her to take on her current role as a leading advocate for human rights for people with dementia. (If you haven’t yet, check out part one of this series, Becoming a force for change—Phyllis Fehr’s story.) One of Phyllis’ current focuses is the Convention on the Rights of Persons with Disabilities, an international human rights treaty that was adopted by the United Nations almost a decade ago….

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“I am a person with dementia and a person with rights.” (Part one)

“I am a person with dementia and a person with rights.” (Part one)

Part one: Becoming a force for change—Phyllis Fehr’s story This blog series is based on the webinar, “I am a person with dementia and a person with rights,” hosted by brainXchange and presented by Phyllis Fehr on December 13, 2017 (part one) and January 17, 2018 (part two). One day, Phyllis Fehr walked through the doors of a grocery store, and found confusion. Phyllis, who had been given a working diagnosis of early-onset Alzheimer’s along with Lewy Body dementia at…

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“People living with Alzheimer’s disease are still people”

“People living with Alzheimer’s disease are still people”

Two Alzheimer’s diagnoses, decades apart, show how much has changed—and how much stays the same—when a family navigates dementia. Sharon and her mother, Esther, were very close. “My mother and I used to talk three times each day. One of the first signs that my mother might have dementia was when I noticed she would forget to call me.” The warning signs of Alzheimer’s disease were well-known to Sharon; it wasn’t the first time that her family had received the…

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A journey through dementia: Savouring the gifts

A journey through dementia: Savouring the gifts

by Elaine MacLachlan My mother died of Parkinson’s disease and dementia two weeks before her 88th birthday.  That was over 5 years ago.  It was a long and often difficult journey.  Looking back now, instead of regret and sadness, I choose to remember the gifts she gave me during that time. And, there were many.  Those are the things I cherish. Her health started to decline around the age of 80 when she fell down the stairs fracturing her pelvis….

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Life with young onset dementia: What you need to know

Life with young onset dementia: What you need to know

What comes to mind when you think of a person with dementia? If you’re like most people, you picture an elderly person in the later stages of the disease. But here’s the thing: dementia doesn’t just happen to older people. While age is still the biggest risk factor, people in their 50s, 40s and even 30s can also develop dementia. We call this young onset dementia and it accounts for about 2-8% of all dementia cases. Right now, 16,000 Canadians…

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What’s love got to do with Alzheimer’s? A lot

What’s love got to do with Alzheimer’s? A lot

By Alex Westman My wife Donna and I met when we were just teenagers—she was 18, I was 16. Despite our youth, we understood early on that we had a deep connection. It was an amazing thing, really, and still is. There was magic in her and she saw something in me. I had a reputation as a bit of a scrapper, but she soon took care of that. These days, I’m almost respectable. I’m a three-term municipal councillor in the…

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Racing for memories

Racing for memories

Recently, my family has joined the unfortunate ranks of those who have been impacted by Alzheimer’s disease. My mom started showing early signs of the disease a few years ago, and it has slowly and stubbornly progressed ever since. The toll that Alzheimer’s is taking on my mom is obvious and devastating. Less obvious, but just as significant, is the impact it is having on my dad. As my mom’s primary caregiver, it’s been said that my dad must ride…

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Power of Attorney: Empowering you to help your loved one

Power of Attorney: Empowering you to help your loved one

Follow us, as Elizabeth Murray tells the moving story of her mother’s battle with dementia. In this blog series, Murray explores every part of the experience of caring for someone with dementia, sharing her memories and insights from it all. Her words serve as a great reminder of the many ways dementia affects our lives, and the lives of our loved ones. Moving my mother into a nursing home was a difficult decision. Executing that decision was even more difficult….

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