“Your mom is so strong.” These were the words I often heard people say to describe my mom. I never really understood what they meant while I was growing up, being the youngest of six children. Why was my mom this strong person everyone kept referring to?
Thanks to my mother, I learned the values of being a volunteer at a young age. She set up a soup kitchen at my elementary school, ensuring that my classmates coming to school without lunch wouldn’t go hungry. When my brother and sister and I joined the Cubs, Brownies, and Girl Guides, my mother volunteered as a leader. She canvassed for various charities. She was always quick to help whenever someone asked.
I have come to realize five key things about caregiving. These steps have helped my mother, have helped me, and have helped make this year better than the last. Now, I would like to share them with you.
Mario Gregorio resides in British Columbia. He lives with dementia. An advocate for dementia awareness, Mario was one of the faces of Alzheimer’s Awareness Month this past January. I’m celebrating my 70th birthday this year. The best decision I’ve ever made in my life was to seek an early diagnosis. I felt that I needed to take control of my medical situation. And I’m glad I did. An early diagnosis allowed me to research more about dementia. I knew that…
When we last left Phyllis Fehr, we heard about how her experiences inspired her to take on her current role as a leading advocate for human rights for people with dementia. (If you haven’t yet, check out part one of this series, Becoming a force for change—Phyllis Fehr’s story.) One of Phyllis’ current focuses is the Convention on the Rights of Persons with Disabilities, an international human rights treaty that was adopted by the United Nations almost a decade ago….
Part one: Becoming a force for change—Phyllis Fehr’s story This blog series is based on the webinar, “I am a person with dementia and a person with rights,” hosted by brainXchange and presented by Phyllis Fehr on December 13, 2017 (part one) and January 17, 2018 (part two). One day, Phyllis Fehr walked through the doors of a grocery store, and found confusion. Phyllis, who had been given a working diagnosis of early-onset Alzheimer’s along with Lewy Body dementia at…
Two Alzheimer’s diagnoses, decades apart, show how much has changed—and how much stays the same—when a family navigates dementia. Sharon and her mother, Esther, were very close. “My mother and I used to talk three times each day. One of the first signs that my mother might have dementia was when I noticed she would forget to call me.” The warning signs of Alzheimer’s disease were well-known to Sharon; it wasn’t the first time that her family had received the…
by Elaine MacLachlan My mother died of Parkinson’s disease and dementia two weeks before her 88th birthday. That was over 5 years ago. It was a long and often difficult journey. Looking back now, instead of regret and sadness, I choose to remember the gifts she gave me during that time. And, there were many. Those are the things I cherish. Her health started to decline around the age of 80 when she fell down the stairs fracturing her pelvis….
By Alex Westman My wife Donna and I met when we were just teenagers—she was 18, I was 16. Despite our youth, we understood early on that we had a deep connection. It was an amazing thing, really, and still is. There was magic in her and she saw something in me. I had a reputation as a bit of a scrapper, but she soon took care of that. These days, I’m almost respectable. I’m a three-term municipal councillor in the…