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“People living with Alzheimer’s disease are still people”

“People living with Alzheimer’s disease are still people”

Two Alzheimer’s diagnoses, decades apart, show how much has changed—and how much stays the same—when a family navigates dementia. Sharon and her mother, Esther, were very close. “My mother and I used to talk three times each day. One of the first signs that my mother might have dementia was when I noticed she would forget to call me.” The warning signs of Alzheimer’s disease were well-known to Sharon; it wasn’t the first time that her family had received the…

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What would you ask a researcher?

What would you ask a researcher?

These people have told us what they would say to a researcher. Here’s a sneak peak of what they asked to get you thinking: what would you say? Stay tuned for more in September. How is the work you are doing connecting to all the other work going on? Everyone shouldn’t be working in silos.                                                                                         Julie Foley, caregiver                                                                                    …

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Introducing the 2015 Alzheimer Society Research Program (ASRP) Community Representatives / Des représentants de la collectivité participent au Programme de recherche de la Société Alzheimer (PRSA)

Introducing the 2015 Alzheimer Society Research Program (ASRP) Community Representatives / Des représentants de la collectivité participent au Programme de recherche de la Société Alzheimer (PRSA)

This year the Alzheimer Society celebrates 27 years of funding research through the Alzheimer Society Research Program (ASRP). The peer review panel meetings were held in February 2015 in Toronto, Ontario, and included the role of Community Representatives. Community Representatives are members of the general public who are not currently involved with research who are given the opportunity to comment on the intent, purpose and on the clarity of the language used within the lay summaries of research applications that…

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Photos from #SeedsofHope day

Photos from #SeedsofHope day

On May 16th, over 1200 people across Ontario planted #SeedsofHope for a world without Alzheimer’s disease. Here are some photos from the day.

Lynn volunteers as a Support Group Facilitator

Lynn volunteers as a Support Group Facilitator

After Lynn Silver’s mother was diagnosed with Alzheimer’s disease, Lynn wanted to get involved with the Alzheimer Society in some way. She sought out a volunteer opportunity and has now been a Support Group Facilitator with the Alzheimer Society for the past three years. Lynn facilitates a Support Group at St Basil’s Ukrainian Catholic Church on Harcourt St in Winnipeg, Manitoba. The group meets the fourth Thursday of every month. “I continue to volunteer because I know how challenging of…

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Introducing the 2014 Alzheimer Society Research Program (ASRP) Community Representatives / Des représentants de la collectivité participent au Programme de recherche de la Société Alzheimer (PRSA)

Introducing the 2014 Alzheimer Society Research Program (ASRP) Community Representatives / Des représentants de la collectivité participent au Programme de recherche de la Société Alzheimer (PRSA)

This year, for the very first time, the Alzheimer Society Research Program (ASRP) invited Community Representatives to participate in the peer review process. Community Representatives are members of the general public who are not currently involved with research. They comment on the intent, purpose and on the clarity of the language used within the lay summaries of the research applications. Their involvement in peer review serves as a mechanism for public accountability by providing feedback on the ASRP peer review process.

Reduce your risk by boosting your brain health

Reduce your risk by boosting your brain health

It’s never too soon, or too late to make changes that will maintain or improve your brain health, changes that may also help reduce your risk of developing Alzheimer’s disease or other dementias. Train your brain. Keeping your body active makes you strong – same thing goes for your brain. Try new things. Challenge your mind with games, puzzles and crosswords. Visit a museum, take a class, play an instrument. Think, connect and engage. Stay in touch. Social interaction appears…

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What is ambiguous loss and grief? / Qu’est-ce que le deuil blanc?

What is ambiguous loss and grief? / Qu’est-ce que le deuil blanc?

If you are living with dementia or supporting someone who is, you may be experiencing a ‘roller coaster’ of emotions. Some days are so good you tend to forget about the dementia altogether. Other days, the smallest thing can send you to tears. Still other days you might feel a nagging sadness that you just can’t shake – even though nothing particularly sad has happened recently.

This ‘roller coaster’ can be related to the ups and downs of feeling grief – yes, a similar kind of grief that we feel when we lose someone dear to us.

Quality of life research takes centre stage at the 2013 Canadian Conference on Dementia

Quality of life research takes centre stage at the 2013 Canadian Conference on Dementia

Earlier this October, 480 attendees gathered at the Weston Bayshore Hotel in beautiful Vancouver, British Columbia for the 7th Canadian Conference on Dementia. Dynamic speakers from Canada and the US known throughout the world were featured in 11 plenary sessions, 4 groups of 3 parallel sessions and 11 concurrent workshops over the 3 days; as well as 6 new and notable oral presentations from young investigators and 55 poster presentations which graced the upper halls of the hotel. Day 1…

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